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1:12
Hunitington's Disease Explained
1.1K views
4 months ago
YouTube
Dr. Christy Kestner, PhD
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Is A Symptom of Huntington's Disease, Losing My Desire? Yes. #letstalkabouthd #huntingtonsdisease
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UCL Faculty of Brain Sciences
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An experimental gene therapy has been found to slow the progression of Huntington鈥檚 disease, according to drugmaker uniQure, a major step towards the first genetic treatment for the genetic and fatal condition.
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This is a draft from a couple months ago. I didn't tell my mom I got tested for a really long time, and then she accidentally found out a year after I got my results and it broke my heart because I was trying to avoid making her feel guilty about it. #huntingtonsdisease #raredisease #hdawareness #speech #mom
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5 months ago
TikTok
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Un témoignage poignant 馃挆 À 32 ans, Maud Garot fait face à la chorée de Huntington depuis cinq ans. Une maladie neuro-évolutive incurable. Aujourd'hui, Maud a de très grandes difficultés à communiquer. Elle souffre de problèmes moteurs et parfois de mouvements incontrôlés. La jeune femme peut toujours compter sur le soutien de son conjoint, Henintsoa, devenu au fil des années son aidant. Nous les avons rencontrés dans leur appartement à Dijon.
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10 months ago
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